First-ever global rare diseases declaration passed at WHA
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Updated By: History Editorial Network (HEN)
Published: | Updated:
3 min read
In a groundbreaking move, the World Health Assembly (WHA) has passed the first-ever global declaration focused on rare diseases, marking a pivotal moment in global health advocacy. This historic resolution brings long-overdue recognition to the more than 300 million people worldwide who suffer from over 7,000 known rare diseases. For decades, these individuals and their families have faced significant challenges, including delayed diagnoses, limited treatment options, and social isolation. By formally prioritizing rare diseases on the global health agenda, the WHA aims to promote equity, inclusion, and access to care for one of the most overlooked patient populations.
The declaration encourages countries to integrate rare disease care into national health policies, support innovation and research, and ensure that no one is left behind due to the rarity of their condition. It also sets in motion the development of a 10-year global action plan, designed to create measurable progress in diagnosis, treatment, and overall support. This bold step reflects a new era of international cooperation and commitment to transforming the lives of those affected by rare diseases, turning years of advocacy into concrete policy and global action.
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Primary Reference: Breaking News: WHA Resolution on Rare Diseases Adopted

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